Clin Exp Otorhinolaryngol. Neck /throat tightness and pressure Total Thyroidectomy 16 . disability; neck pain; neck stretching exercises; thyroidectomy. I was also informed when they removed my thyroid there was a parathyroid gland in each of the thyroid sections removed (so I have 2 of 4 parathyroid glands removed as well) this is probably why I had minor problems with calcium and magnesium levels. On May 17th I went to Bangor clinic for a update with my primary care provider and we discussed things like my recovery plan and basically made sure that they had a full picture of my current health. She was right, the yogurt was a snap to get down while the apple juice was really painful. The Nutritionist who gives this seminar said she would check through my medical record to make sure my levels were normal and if she couldnt find all the blood tests she would order them so I could get my nutrition balanced. I got 57mci of RAI. The only good thing is that they have taken me off the Low Iodine Diet and are starting to give my Synthroid. For this is a forever journey I am on! and his team (same group who did the right one). None for cancer, but enough to make me a believer in getting a second opinion. The day of surgery I was scheduled for 2pm arrival and a 4pm surgery as an outpatient. It has been 3 weeks today since his surgery and he is experiencing these symptoms. The hospital said I could return to work after 2 days of isolation but my doc said 7 days ( I work with kids and have 2 kids). They want me < .1. Suffice to say, I was very disoriented for about the next 10 minutes. With that in mind, here are 5 things that I think you should know if you've had your thyroid removed based on THIS experience. At 18 days post surgery the throat pain flares up only if I over use my voice. I had to drive to Denver three days in a row. He has started scheduling me with weekly appointments. The two most common early complications of thyroid surgery are hypocalcemia (20-30%) and recurrent laryngeal nerve injury (5-11%). Do they usually do AG and AGant blood work right after TT? I'm not sure if this is related with the numb feeling I'm having. RAI was the next thing that worried me, but once again, I found that it was overly emphasized online. Muscle cramps. When I arrived on the first floor I was taken into the recovery room for pre-op. My blood pressure which normally is very normal (120 to 125 / 80 to 90) was spiking at that point at 160 over 105 and I know it was just anxiety and ativan would have helped. I had a Total Thyroidectomy around 9 weeks ago for FVPTC, then they ran me hypothyroid for 6 weeks and pushed TSH over 100, then did my RAI 3 weeks ago. Is the lack of hormone 6 days post op the reason for feeling like HELL??? Takamura Y, Miyauchi A, Tomoda C, Uruno T, Ito Y, Miya A, Kobayashi K, Matsuzuka F, Amino N, Kuma K. World J Surg. What to Expect After Thyroid Surgery | University of Maryland Medical My first endocrinologist was awful to deal with so I switched to seeing my current endocrinologist, who is ok but a hour and a half drive and she recently reduced her clinic hours to just on friday which doesnt work with my work schedule. No chemo or typical radiation but I had pretty major surgery, will need to take meds the rest of my life and LID and RAI was/is no picnic. A postoperative neck ultrasound conducted in the clinic did not show any suspicious nodes, masses, hematoma or collection that could potentially compress the sympathetic trunk. In late November I realized I was getting mild depression and my workouts were getting harder to do and basically was running out of energy. That said I had this horrible monkey on my back for weeks and I really couldn't shake it. At about 6:45pm the anesthesiologist came in, asked a few questions and said he was hoping for my surgery to start at around 7pm. However, since my surgery, I've been hit with insomnia. You can get angry or upset if you want, but in the end it is what it is and you got to just keep pushing along with your life. I was sweating pretty badly and was given anti-nausea medication (it really wasn't that bad to be honest). Once again, have never had that problem nor do I know anyone personally who has any issue whatsoever. People with a history of keloids (excess scar tissue) may experience more scarring after thyroid surgery. Endocrine Today | A 27-year-old woman with no significant medical history presented to our institution for management of her thyroid cancer. We were told it is papillary cancer but the aggressive kind, so he will need a pet scan every 6 months. Not sure what my TSH read at those doses, but I see my oncologist in a few weeks and am requesting a copy of my medical records should be able to figure out what my levels were with each by comparing them to the dates of prescriptions. get a second opinion if you are not satisfied with the care you are getting. One local and one about 50 miles away at a major teaching hospital. Thyroid cancer - Diagnosis and treatment - Mayo Clinic I'm sleeping over 14 hours+ a day, I'm shaky, chills off and on, but no fever. So, I expected the experience to be a bit like an assembly line. That was attributed the nodules and the cancer. Post thyroidectomy pain in neck? : r/thyroidcancer - Reddit Appreciate any help on this. I'm excited to BE that friend but as of right now I'm still in the middle- waiting for test results and piles of bills. Every step of the way I've made sure to get the best of the best, and so many times I've gone to new specialist who have said "you're so lucky you had the surgeon that you did, because he's the best of the best and did a fantastic job". Double check with your insurance even if your dr and hospital say you're covered. In the morning they brought me what I asked for for breakfast (Cherios, yogurt, and apple juice). She was confident that these findings appeared after her thyroid surgery. 5) Biopsy report came back showing 2cm+ Papillary - w/ follicular variant, and Lymphocascular invasion, but completely contained in Thyroid. That was pretty much the best thing I've ever eaten! If you look it up on the Internet it is supposed to be hooked up to an external temperature air conditioning unit. I go back to my Drs office for results next week and am doing my best trying to stay away from my sweet family and dog. 2019 Dec;98(51):e18309. The effects of cervical kinesiotaping on neck pain, range of motion, and disability in patients following thyroidectomy: a randomized, double-blind, sham-controlled clinical trial. NSAIDs (non-steroidal anti-inflammatory drugs) such as ibuprofen (Motrin, Advil), naproxen (Naprosyn, Aleve), or acetaminophen (Tylenol) are most helpful for any pain after thyroid or parathyroid surgery. On Feb 25th I had the first visit to mental health but do to the fact that my hearing was as bad as it was along with the recovering from surgery I was rescheduled for a later time. I have friends that "had a friend that went through this and they are just fine". 2) Did anyone else get post RAI Ultrasounds and show remnant tissue in thyroid bed? When I arrived I caught up with my family who brought the things i needed (PLEASE buy a nice neck pillow, I got a memory foam one from Amazon and it was a comfort saver) and even laughed a bit. The stretching exercise group learned the neck stretching exercises immediately after total thyroidectomy. Minor differences in their approach. I was advised to see an endo ASAP. Neck Pain: 6 Common Causes and Treatments - Cleveland Clinic My only regret at that point is that I didn't ask for ativan or xanax or something to calm my nerves it could have been given IV. An observational case-control study was carried out. I woke up with full back and neck in spasm do to previous athletic neck and back injuries. Another trip to Madigan with another appointment with ENT at Madigan. The surgery went well but do to low calcium and magnesium levels (parathyroid(s) where not fully functioning) I was kept in the hospital for 2 days to ensure my parathyroids were maintaining proper levels. July 15th Friday Madigan hearing consult from first ear surgery and pre surgery plans for 2nd ear surgery ENT clinic follow-up from thyroid surgery and the start of the planning for my 2nd ear surgery. A randomized controlled trial was conducted. Ask to be treated in the hospital for RAI to protect your family and the rest of the world. This is upsetting to me because everyone said I was safe to have normal contact with my kids at 7 days ( hospital said 2). The transfer team asked me to put the bair paws gown back on and I said no it was too hot. By Friday morning I got up at 7:15 a.m. and stood in line in 32 degree weather for some Goose Island Bourbon County, went to lunch and ate a cheeseburger. I was told I had a goiter and it could be cancer so I needed to get to my primary dr asap. That is where my memory starts to come back. There's just so many nerves and glands and other structures in your neck that you don't want to mess with, don't make the mistake of blindly putting your future in some random doctor's hands. Post thyroidectomy neck pain after endoscopic thyroidectomy. Have questions about navigating your Inspire support community or need assistance from one of our Inspire Moderators? This hospital uses fentanyl and midazolam post-op. Getting up and moving was huge - really helped shake off the remaining cobwebs from the anesthesia. If you are taken care of only half as well as was I, then you will be in excellent hands at the hospital. Nerve pain or neuropathic pain comes with skin sensitivity, tingling, numbness, and stabbing pain. Figured I'd chime in with my own experience, since everytime I see posts it sounds like a thyroidectomy is the worst thing in the world and its better just to live with thyroid cancer. Chronic post-thyroidectomy pain: Incidence, typology, and risk factors Ultrasound revealed another Lymphnode near Thryoid bed that is 1.5cm (Where did that come from, could it be enlarged due to surgery? Your thyroid gland makes hormones that control your metabolism, body temperature, and heart rate. He also said he would slowly decrease our visits since I am not having the depression issues and I am in a stable mental condition. Went to Bremerton naval emergency and they put me on oxycoton and told me to go to Madigan on Monday While doing the setup for the Stapendectomy preparation Dr H. noticed I had a lump in my throat and sent me in for further testing. He switched my meds from levothyroxin to synthroid and I noticed a big difference the first day! Side effects of thyroid surgery are common and include neck pain, a sore throat, difficulty swallowing, hoarseness, and temporary hypoparathyroidism that usually resolves within a few weeks. Everything is looking good cancer wise they will tell me more in December when I meet with my endocrinologist. You should not lift any heavy objects for about 2 weeks after your operation to avoid any strain on your neck. I hate the word goiter. Some people are put on T4 when they leave the hospital. That was where the majority of my swelling was, this corresponds to about where the top of the thyroid was. I am still having the constant dry mouth and the metallic taste is still annoying. Some of it was while I was still sore and using pain meds. Objective: Stretching exercises to reduce symptoms of postoperative neck - PubMed So, I feel like I'm ending on a negative note but this is my reality right now. 2. Lots of people on here talk about how awful having a thyroid replacement medicine is, and that no one ever feels totally ok on it. PMC He also set me up with some Blood tests and put in the recommendation for a full Sleep Apnea study in Silverdale. 2 Mar 2011 1 year from being told I have cancer. So I went on my low iodine diet (lid) for 2 weeks - I screwed up and had been using coconut milk with carageenan in it so I had to do lid for two more weeks! Next for me is RAI and then WBS. For starters I only discovered what an endocrinologist or Thyroid even was like 8 weeks ago. On April 20th I was informed that the results from Armed Forces institute of Pathology Washington DC and the summary was that the large mass of follicular cells was also cancer. They ran blood tests, no infection or blood clots . On June 10 I had my follow-up with Dr H. for the thyroid removal and got another unofficial look at the CT scan. Complications associated are still common and 80% of patients complain of posterior neck pain. A nurse came in shortly after that and I started an IV with a saline drip. Growths: Masses, including tumors, cysts and bone spurs, can put pressure on the nerves in your neck, causing pain. Be careful. This is probably the single most important thing that you understand if your thyroid has been removed. I remember my throat hurting pretty badly. Swallowing discomfort. Show quoted text. My wife took my kids up to her parents in Wisconsin and my mom stayed with me in Chicago. As days pass, I feel that this might not be a good decision. his right arm had a deep muscle hurt, like a toothache. I am 27 years old and was diagnosed with papillary thyroid carcinoma in December last year. 30 Nov 2011 Official Retirement from Navy. My wife went home to take care of our kids and my mom came in for a couple hours. I also feel sad that my recovery has stagnated and I don't see any improvement in my voice or breathing. Thyroid Surgery Recovery, Side Effects, and Complications - Verywell Health . My doctor recommends endoscopy to check how the vocal cords and other nerves have healed inside but I am.just not ready to go back to the hospital yet. Oh and the medical bills might be the end of us financially. Follow-up of the patients with the scales applied in the experimental group were also performed to the control group at the same intervals. 7) Did an RAI 90mci on Sept 4th at night. I got into bed and took a 3 hour nap, which was pretty glorious. I am currently taking 275! 8) Waiting on TG and TGant tests Monday, but surgeon wants to biopsy the 1.5 cm lymphnode and open me up this week and remove if cancerous. A new nurse was on duty at that point and she pointed out that thicker things were easier to swallow than thinner things. They redid the area around my neck for about 10 more minutes (this is slightly unnerving). I am hoping against hope that I can build my endurance with regular exercise. So frustrated and all alone - 2nd guessing what Dr's have done and why. Cleanse the incision area the day after surgery. Evid Rep Technol Assess (Full Rep). I had to use the urinal, but it is just easier to use it in the bathroom than in the bed for me. Although there are a limited number of studies showing effects of neck stretching exercises following a thyroidectomy in reducing neck discomfort symptoms, no study has specifically dealt with and examined the effect of neck stretching exercises on neck pain and disability. Also, at home, you have to empty and measure the JP drains yourself, and when I had them in my abdomen that as difficult. I did not have a JP drain, but I've had them for other surgeries and I know they are annoying. Well low and behold, I am still very radioactive after 8 days to anyone closer than 4'. All internal stitches and only steri-strip on the outside. I went to both appointments with a list of written questions. We had to travel to Cleveland Clinic for the surgery on Oct. 28th due to the surgeons here would not do it. When I tilt my face upward and try to swallow, this discomfort is magnified. Both doctors answered every question openly and forthright. First, let me say, I don't like iced water. Surgery was over at about 8:15 and they decided to keep me overnight because my calcium levels wouldn't be back until way late. I did not want to be anywhere around my kids or clients. Most people start to feel recovered in 10 to 14 days. Application of the healthcare failure mode and effects analysis system to reduce the incidence of posture syndrome of thyroid surgery. Just to briefly give my details again. Kappeler mentioned Horners syndrome as a complication of thyroid surgery in 1865, and Kaelin reported a case of the syndrome following thyroidectomy in 1915. The nurse said, how was that. Lump in my neck after Total Thyroidectomy - Thyroid cancer - Inspire For me, this was the only appointment at which anyone even discussed paying up front for services. The pain is in the natural curve of my neck, about 2-3 inches above the incision. I've posted a few times since my thyroidectomy on 12JUN; but really wanted to give a more detailed account. I think my voice was the last thing to come back, but after 3 weeks that was fine as well. MeSH It has been beyond informative and makes a huge difference knowing there are people out there that understand. Some of what I posted before was right after surgery via my smartphone. Tightness, fullness, painful neck post Thyroidectomy Ask for the brand name thyroid drug. I had a softball size tumor and didn't even know it was there, it makes me angry that I didn't, after It was pointed out to me I could actually palm the mass as I swallowed. Below are general instructions for patients who have had thyroid or parathyroid surgery. No idea why this report was 2cm and ultrasound showed 3cm. 1) When can I start running and exercising? Hi to give you a little history, in Feb 2014 I found a nodule on my right side of my thyroid byopsies and scans done I was told it was fine nothing to worry about 1 month later I get a pain on my right side scan done I have a nodule on my right overy the advice given at the time wad to remove the right overy but it was my choice as to whether or not I would opt for both to be removed this was a tough choice as a radical meopause was to follow I was 48 at the time however this is where things get very interesting on the Tuesday before my overy removal I ruptured a ligament in my left ankle this was in June op put off until cast off and I was walking around log story short did op in late August and nodule was gone I was delighted and very relieved and thanked god for my lucky escape I'm self employed and I had never been incompassatated before off I went to take control of my life again my ankle never fully recovers I have a cronic pain in I'm neck with tingling down my right arm visited my GP regulary who's best advice was to have an anti depressent which I refused went to a chiropractor as a last resort she was excellent she saved my soul on the spot she told my I needed an mri and an appointment with a nurosurgen immediately 2 weeks later I meet my nourosurgen and I have a very serious condition since I had rip tured my ligament I had also injured my c5 c6 cervical spine and needed to be operated on straight away but my nourosurgen wanted to know who was looking after my thyroid no one was as they had said it was nothing to worry about saw another surguen mor scans mor byopsies the long and the short of it was I had neck surgery in june 2015 right thyroidectomy September 2015 I had micto papillary carcinoma because it was micro no treatment was deemed necessary I had put on alot of weight and thankfully I started to loose it fast forward six months to frebruary and my husband say that lump is growing again I hadn't even noticed myself more scans more byopsies more doctors I have a new nodule in my left side byopsie was incunclusive Doctor wanted to do surgery in may I refused he suggested July I refused again I couldn't face another Summer like the last 2 surgery done on the first of September no results yet as I'm not seeing my surguen until 5th of October I'm hoping this is a good sign so I had 3 ops in less then a year in the same neck area I'm in alot of pain that's from my disc fusion my thyroid area is just very tender I'm taking eltroxin 75mg calcichew and magnesium daily nows the thing I eat very healthy I'm still putting on weight I have very little energy I can cook a good dinner but that is about all I have no interest in work or am I even thinking of going back I have developed a pain in my back teeth very annoying I have a pain in my tight hip (where it all started) and now I'm afraid I may have another nodule on my overy I'm afraid to visit my GP my question is this they are fairly sure these nodules are estrogen fueled but they won't do anything to supress it and this has me worried are they going to do more treatment I don't know I think I would prefer if they did because knowing my luck I will get another nodule on the remaining tissue anyone have any ideas On Mar 09 2010 I had a thyroidectomy completion surgery. RAI was determined to be unnecessary, though I see my oncologist every 3 months (had one scare where some of my lymph nodes blew up necessitating a CAT scan last year), my endocrinologist every 6 months, and have my neck ultrasounded every 6 months. Could be in the supermarket or at KFC, I have no idea. I was a bit hysterical as it common to do TTs on children as early as 1 year of age with MENS. I didn't overly strain, but I did have one day where the pain meds must have overwhelmed the stool softener and I pushed a little harder than I think I should have. The patient underwent total thyroidectomy with central and left lateral neck dissection. I was told I would be having surgery in mid-October and it was not able to be scheduled until November 23. I know part of it is because of my cats needing cuddles at 3 am, but I was wondering if anyone else had this problem. Nothing like feeling normal. 2011 Jan;34(1):62-71. doi: 10.1016/j.jmpt.2010.11.005. 29th of July. Every now and then my salivary glands hurt a bit massaging them helps. I had a total thyroidectomy last week. It's not completely numb but the inside feels like muscle / skin is falling asleep or 'thick' (not sure if i describe them properly). Through the Fall I kept feeling the pain in my neck and again spoke to my primary care doc. Has anyone struggled with breathing issues post TT? That caused the pain in my throat to come back stronger for a day or so. Then a bunch of insurance crap happened (my entire surgery may not be covered because the ENT was not on my list of docs I could see - this is bs but a completely different story) and I had to start driving an hour away to see an endocrinologist. He admitted that he would have liked to have seen me when I was still had my thyroid issue but we will work from where I am. Ask questions on here. My partner, expecting me to be in surgery by 4pm, had left around 3:30pm to go to a nearby hotel and take a nap. So I was told at that time . Will do an RAI in 4 weeks. I was diagnosed by chance, I was actually post op on back surgery and I mentioned to my neuro the pain in the back of my neck, he ordered a soft tissue MRI and this was discovered. After surgery, you may have a scar at the base of your neck. Find other members in this community to connect with. In any event, we went to the store when I got home and stocked up on ice cream, yogurt and pudding. Your health care provider may advise using sunscreen to help keep the scar from being noticeable. I was diagnosed with papillary thyroid cancer over the summer and received a total thyroidectomy and bilateral neck dissection two months ago. If I hadn't known about 7 other women who had all gone through total thyroidectomies and RAI with absolutely no lingering symptoms, I would have been freaking out prior to my surgery. Your thyroid is a butterfly-shaped gland located in the front of your neck. In the meantime non-invasive treatments based on ultra sound, radio-frequency may help. He said he wanted to get my RAI done - he likes to do it within 3 months of surgery and thought it had been enough time since ct. We also scheduled appointments for me with the same nutritionist that S. has been using for her weight loss. I also never took any narcotic pain killers after surgery. I was diagnosed with a large thyroid mass Dec 2009 Bremerton Naval Hospital in Jan 2010 they determined the mass was follicular cells but could not determine by fine needle aspiration if it was cancerous or not but since it was making it hard to breath they decided to operate to remove my right side thyroid this happened on Feb 22 2010. Given that I had what my doctor (the top thyroid surgeon in the region who does hundreds of surgeries a year) said was the biggest surgery he had done all year, my recovery was much worse than what most peoples should be. Keep a log of questions. If I can be as much of an emotional and psychological mess as I was and get through it I promise you will be just fine. I'm considered low risk for recurrence. This site needs JavaScript to work properly. I had compression stockings on that kept me up, noise like crazy in the ICU, nurses and doctors coming in, 2 IV (one in each arm), and a blood pressure monitor going off every hour. I also felt myself getting hungry which was a good sign.

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